3/23/09

Speech Therapy!!!!

What a day! I am so tired got up this morning did my usual thing of trying to get Ryan dressed for school them all breakfast, then get the other two dressed for Bailey's speech therapy appointment all while Bailey was screaming lol. This is just the usual chaos of our house.

What happened in speech therapy oh yeah the speech therapist named Pip says that Bailey not being able to swallow and gagging and spurting out food at me and aspirating is all behavioural eating and he should get over it soon!!! She also told me that we need to see a dietitian as well because he is not nearly eating enough(3 180ml or 5oz bottles a day and 2/3 a jar of baby food) Bailey has food allergies well he is allergic to milk protein so i have to be very careful as to what i give him. She also told me that i had to stop when he has had enough!!!! Are you kidding me??? He would not have any solids at all only i force him to. She also doesn't think that this could be cerebral palsy related.
Bailey acted the little charmer for absolutely everyone smiling and gooing and gaaing. Pi
p actually said to me his a happy baby. I replied with you have him for 24 hrs and you would not think that. He is happy when he is with me and the3 times out of 10 he'd be more then happy to lay on the floor and play with his toys. I don't want to be one of those people who only focuses on the bad stuff. Another bad night of sleep as well he is just refusing to sleep and his not hungry i'll try to give him a bottle but he will refuse it.
We went shopping after i got Bailey some new clothes and Ryan and Thomas a surfboard each. Ryan also needed some new swimmers he has his school swimming carnival soon and the old ones were getting a tad too tight! Thomas also got some puzzles something he is really into at the moment and something that Bailey would love to be into too lol he thinks its quite funny to roll over to where Thomas is and steal the bits!
Tomorrow i have an appointment with the Health nurse luckily she comes to my house so i won't have to go anywhere. Oh and Bailey had diarrhoea last night don't know if his getting a bug or teething we will see.

3/22/09

It's a start!!!

Hey well everyone i suppose, I wanted to start this blog mainly for my premature baby Bailey and also for my two older boys as well. I'm new to this so give me a break if i muck up lol. Bailey was born at 29weeks gestation, i did go into threatened premature labour with him at 25 weeks but they managed to stop it. My waters broke 4 weeks later. I went straight up to hospital to be told i would be staying there until i had him. I also had gestational diabeties that i could not control. Two days later i woke up feeling like crap. My stomach hurt and i just felt horrible. I was starting to get an infection they told me i had to be induced and now so i had to have three drips put in one for insulin infusion one for antibiodics and one for syntocin. Bailey was born at 12:08am after a 12 hour labour naturally. He weighed 2 pound 14 ounces he even let out a little cry which made me sooooo happy. Two hours later i got wheeled down to see him. It was love at first sight and he was sooo tiny. This whole world that was Nicu would be my life for the next couple of months, before this i didn't even know it existed my other two boys where full term. Bailey was on the ventilator for 1 day!!! Which is pretty damn good then CPAP for a day then nothing. He had 3 blood transfusions about 5 nasty infections and had to go back on CPAP after his first blood transfusion. He was in a humid crib till 1 week before he came home and came home at 35 weeks gestation weighing 1.9 kilos!!!

Well it didn't end there and im sure all the premmie parents out there would agree with me Bailey has been admitted to hospital about 12 times since he was born. First time was for a blood transfusion 2nd was when he stopped breathing on me and i had to do CPR on him which was pretty scary. He has also been admitted for bad reflux and bronchilitis numbers of times.



Bailey has some issues at the moment he is 10 months old and has only just started rolling and he is stiff in his arms, has swallowing difficulties, has seizures, is very irritable and a barage of other things. We are currently being assessed to see if he has cerebral palsy.



I just thought it might be good to let other premmie mums out there that your not alone and we are all here for you plus i needed to vent lol.



Bailey is a mummys boy and absolutley loves his two older brothers, Ryan 5 and Thomas 3 and although all this has happened i would not change having him for the world he is my little ray of sunshine. :)



Anyway i hope i get at least a few readers lol Bye till tomorrow xxx