Sleeping like a baby (or not)!

Bailey who has been put in his toybox by his brother!!!
Smile!!!

This is how i found him one day when i had been blogging i came out to find him like this!

Well sorry for not blogging lately I just havent had the time. Bailey is getting such a handful what with that and Ryan going to schooleveryday and Thomas needing my full attention when Ryan is at school because his bored well you get the drift.

Bailey is doing pretty good! He has moved on to nuttelex, chicken, lamb and we have to start swede today! He also gained 130 grams in a fortnight thank god i was really worried about his weight gain! We have also started giving him his losec again apparently his throat is red raw and he doesnt have tonsilitis so the Dr can only assume it's from his reflux so bring on the 10mg losec. He has been putting his fingers down his throat when he is eating so i'm not quite sure if thats to do with his reflux i'm 90% sure actually.

Bailey development stands at this he has finally learnt how to clap hands but only when prompted (I have to hold his arms) He is still not waving goodbye. The hand tremors are back only when he is trying to feed himself and he drops his food a lot. He is crawling like a greyhound seriously I haven't seen a baby crawl as fast as he does but on the other hand he has started to drag the left leg a lot. He has also began sitting on his tailbone I'm not sure what that means. He can stand by himself(that's right folks) for 5 secs with a big goofy grin on his face and to my complete and utter surprise took 3 steps last night to his daddy!!! He has major problems with balance but his getting there and his trying which is what counts!

Sleeping is another issue. He is just not that into sleeping he has 1 day sleep lasting from anywhere between 1 hour and 2 hours and goes to bed at 8:30pmand wakes at anywhere between 4:00am and 5:00am. Lucky for me I have a great husband who every second day gets out with him so i can have a little bit of a sleep in. I will leave you with some recent pics of my baby boy!!!

A weight loss!!!

I was hoping that i wouldn't have to put up anything about a weight loss today in fact i actually thought Bailey had put weight on i was sure he would be 9.5 kilos at least! I was very very wrong. In the last fortnight Bailey has lost 100 grams so he now weighs 9.06 kilos and is 77.5cm tall i was devestated I have been working my heart out to get him to eat this last week and i thought he was doing great he was certainly eating a lot! Apparently not enough so i am waiting on a phone call from his dietitian to see what to do. I don't know what she will do because if i add extra calories to his bottle he just doesn't drink as much!!

Ryan went back to school today after having 3 weeks off! Talk about tiring all the older boys did all the holidays was fight so today is actually very quiet i miss him lol. He didn't look very happy at going back either and told me he had a headache. I didn't know if he was telling the truth or lying so i told him if it got worse id come and get him from school. He does have headaches Ryan and he near vomits with them and has to be in a dark room so i hope he is not getting one of those!

Blah Saturday!!!

Well i feel like crap. I have a sore throat and feel like I'm going to be sick! But the kids are all good at the moment which is a plus. It was not however the case on Tuesday, wedenesday and Thursday for Bailey. He was getting high temperatures and really sleepy i ended up getting the dr up for him on Thursday and he said that everything looked fine but he was going to send off a urine sample just to make sure because you don't just have high temps for nothing!

We went to OT on Tuesday as well it was pretty good all in all we discussed some of Bailey's sensitivitys and new ways in which to deal with them. I had a few concerns but wasn't sure if it was concerns that OT would have to deal with so I told her anyway when Bailey is pulling to stand his ankle looks like it is near bending backwards and when he moves his feet he is nearly always on tipytoes and also he has begun tol sit weird like on his tail bone its hard to explain. Also he has been having trouble eating finger foods he is always choking on them he doesn't chew he sucks. So the OT is going to talk to the PT and ST and see what they think I have an appointment with the PT next month anyway.

BAiley is completley back to his normal self the last two days however so I'm thinking that this may of just been a virus. He is still constipated but what's new there. Oh and he has two new little additions in his mouth- his two front teeth are finally coming through thats 4 teeth now hehehe!

Bailey's 1st Birthday Pics

Baileys "smiling"

and again but isnt it cute

Up close and personal!

Cool little dude!!!

Sorry they took so long but my computer is sooooo slow putting these up!!!Bailey has this really cut smile going on at the moment it all happened the night before his birthday whenever i would put the camera up to take a picture well u will see what i'm talking about lol.

Trying Tuesday!!!

Well not a real lot has happened since my last post. I went into a bit of a blogging rut and havent blogged for ages-sorry. It was my Hubbys birthday on Sunday and the boys helped me make a birthday cake for him and i cooked him a roast.

Bailey had an appointment today with both the health nurse and early Well didn't go too well with Baileys weight gain he only gain 80 grams in 2 weeks so not so good and he grew a cm so he is now 9.1kg and 77cm tall. Rang the dietitan because im getting concerned about his weight people are continually saying to me he is skinny. She also became concerned when she noticed for his corrected age he is in top line for height bottom for weight. I'm just having real trouble to get him to eat. With Bailey its either he eats alot of solids or drinks a lot of milk its either one or the other and it really frustrates me. The dietitian said he should be having at least a litre of fluid a day on top of his restricted diet at the moment. Bailey has 800ml at the most and thats on a good day when he hasn't eaten much on a bad day he will eat heaps but only drink like 400mls. To top things off his is still badley constipated and im out of things to try.

The peadiatrian i see doesnt want to give him large doses of parachoc all the tim in fact he said that the person who seen me in the emergency room was wrong to give him a 20ml dose Bailey should of only been have 5-10ml at the most. Poor littlwe guy is in soooo much pain when he passes a bowel motion and he wont touch any juice.

Early learning went ok Kathy is really lovely and she brought some stuff for the other two boys to play with and they sang songs and stuff. Bailey is becoming increasingly touchy with whoever touches his arms he immediantley becomes stiff so we will see where this goes next time i see OT.


On a more humorous note Ryan is all in to nameing things out at the moment being a typical 5 year old and he was trying to pronounce coke unfortunatley he got it wrong and said cock. I'm sorry but all i could do was laugh he thought i was going to go mad at him but he was only trying to sound out the word not purposley say it hehehe.

Diagnosis is.......

Well we haven't official received a diagnosis yet-thats the diagnosis! When I took Bailey to the specialist yesterday he said that he could have one of two things. 1 a underdeveloped nervous system or 2 mild cerebral palsy. He said we will not know for 6 months if the things he is having trouble with are still there then it's more then likely mild cp but if they aren't or if they arfe slowly improving then it's more then likely an undeveloped nervous system so I think we will just have to wait and see. I'm actually a little bit glad to have a diagnosis of some sorts and know that he may just get better that's what I've been wanting to hear for a long time. Seen the OT while I was there (she was in the interview) And she has been noticing Bailey is having a few sensory issues so she gave me this sensory profile to fill out and i see her again on the 9th of june.

We have finally moved onto pear and ground rice no longer just ground rice. Poor little Bailey was getting quite sick of the stuff and was looking at us while we were eating with those pupp dog eyes saying give me some mummy!!

Nervous with a capital N!!!!

Well todays the day i will know for sure wether Bailey has got cerebral palsy or not and i am so unbelievably nervous! I was up tossing and turning all night , not that it makes a difference in what we are already doing and how we treat Bailey it's just now we will have a definate answers as to why he does some of the things he does. I've written out a list of things to tell the specialist and i keep going over and over the list to see if there is anything i have forgotten or missed out. To be honest I don't know if i'm going to last the 5 and a half hours, but then again i've been waiting for this since November!