Bailey's first breastfeed!!! I know don't you just love the pink blanket lol!!!
Bailey on CPAP
Bailey 1st blood transfusion4/8/09
Photo's
Bailey's first breastfeed!!! I know don't you just love the pink blanket lol!!! Bailey on CPAP Bailey 1st blood transfusion
Good News...... Not So Good News!!!!
Well for once I'd like to start of with a positive so I'm going to start with the good news!!! Yesterday Bailey was weighed and he had put on 13o grams in a fortnight and he grew a cm he is now 8.5kilo and 76cm long. He has also surprised me by starting to crawl mind you he falls over an awful lot so don't know if it's to do with the weakness down his left side but it's a start and his steely determination has me bursting with pride.
Now for the bad news Bailey is sick well he has a fever and has lost his voice and did not sleep well last night. He hasn't eaten any solids at all for 3 days now. I had the dr up for him yesterday and he said first off that one of his tonsils was 3 times bigger then the other one! He then proceded to the couch looking very worried. I asked what it could be and he said well it could be the start of tonsilitis but its weird. Then he said I'll another look the second time he had a look he said oh no it's just slightly bigger and said that i had to keep an eye on wether he starte dto get fevers or not which i already knew. Sometimes i wonder if he changed his mind so that i would not worry so much :)
We have got another appointment today so i will tell anyone what happens on my next blog :-)
Now for the bad news Bailey is sick well he has a fever and has lost his voice and did not sleep well last night. He hasn't eaten any solids at all for 3 days now. I had the dr up for him yesterday and he said first off that one of his tonsils was 3 times bigger then the other one! He then proceded to the couch looking very worried. I asked what it could be and he said well it could be the start of tonsilitis but its weird. Then he said I'll another look the second time he had a look he said oh no it's just slightly bigger and said that i had to keep an eye on wether he starte dto get fevers or not which i already knew. Sometimes i wonder if he changed his mind so that i would not worry so much :)
We have got another appointment today so i will tell anyone what happens on my next blog :-)
4/6/09
Sorry Sorry Sorry!!!
Sorry to anyone who has been reading this, If there is anyone lol, I have been so busy the last week and a half and haven't had time to get on to do another blog.
Last week was soooooo packed with apoointment after appointment. On Tuesday I had well Bailey had Physio and occupational therapy. He screamed the whole time he was there and was not cooperating at all. If they even so much as looked at him he would scream which made their job very very hard. I asked them if they thought he had cerebral palsy and they said that he does show some signs of it. They were quite happy with his gross motor skills. Not so much with fine he is still very stiff in his elbow and shoulder joint he does have the range there but he doesn't like moving it for some reason. The occupational therapist said that i had to go back in 3 weeks so she could do some arm measurements, Don't know what for???, and that she may even splint his arm next time. This whole time we were talking he was screaming and i mean screaming he litrally was sobbing. As soon as we got out in the car he stopped and went to sleep!!!
On Wednesday we had 2 appointments one with Early Learning and one with the NICU team which is a follow-up 8 month corrected appointment. Early Learning came to my house which was really good cause its starting to get really cold here. There was two women this time because the one who usually is the one who is in charge of the premmie playgroup is handing me or Bailey over to another one who is in charge of a playgroup that is for babys with disabilities or learning difficulties(whoa that last sentence confused me lol). It was really good actually they focused on the things he was doing rather then the things he wasn't which not many people do. He even got up on hands and knees and crawled 2 crawls!!!! Woo Hoo Bailey. They agree he does have the weakness on his left side . When they were trying to get him from lying to sitting he wasn't putting his left hand above his head like he is supposed to. They were great with Thomas as well the new Woman that i will be having was playing with him and he loved it lol. I have another appointment with her in two weeks.
The Nicu appointment was good as well they have the same concerns that my other private pead has that he is slightly stiffer on the left side then the right but that my private pead is doing everything right. Oh and they said something about going off his elecare im not sure why he isnt eating much still. He lost another 200grams in a week so it will be interesting to see what he weighs tomorrow at his health nurse check.
On Thursday he had hiss eeg appointment. Well lets just say it didn't go very well. They couldn't get a trace because Bailey was not having a bar of having all these wires on his head and he screamed and hyperextended and they couldn't do it. So now he has to have it done again sometime this month under sedation!!! Now I'm totally freaked out I just don't know if they will montier him, How they will give it to him because he can't take anything orally and what will happen if something else happens lol. I know i might sound paranoid but oh well. I also am meant to be seeing my private pead this week to discuss his eeg and how much medication to give him for his seizures but how are we going to do that if there are no eeg results. I figure i should go anyway because there are questions i want to ask him about the sedation and seizures anyway.
Then on Friday we had Ryan's swimming carnival so off we went to that he did very well and came 2nd in one race. We also got his report card it had on it that he wrries if him makes a mistake i told his teacher that he is like this at home as well and i tell him if he tries his best that is all that matters.
I spent the weekend relaxing well as much as a mother of 3 can relax!!!
Last week was soooooo packed with apoointment after appointment. On Tuesday I had well Bailey had Physio and occupational therapy. He screamed the whole time he was there and was not cooperating at all. If they even so much as looked at him he would scream which made their job very very hard. I asked them if they thought he had cerebral palsy and they said that he does show some signs of it. They were quite happy with his gross motor skills. Not so much with fine he is still very stiff in his elbow and shoulder joint he does have the range there but he doesn't like moving it for some reason. The occupational therapist said that i had to go back in 3 weeks so she could do some arm measurements, Don't know what for???, and that she may even splint his arm next time. This whole time we were talking he was screaming and i mean screaming he litrally was sobbing. As soon as we got out in the car he stopped and went to sleep!!!
On Wednesday we had 2 appointments one with Early Learning and one with the NICU team which is a follow-up 8 month corrected appointment. Early Learning came to my house which was really good cause its starting to get really cold here. There was two women this time because the one who usually is the one who is in charge of the premmie playgroup is handing me or Bailey over to another one who is in charge of a playgroup that is for babys with disabilities or learning difficulties(whoa that last sentence confused me lol). It was really good actually they focused on the things he was doing rather then the things he wasn't which not many people do. He even got up on hands and knees and crawled 2 crawls!!!! Woo Hoo Bailey. They agree he does have the weakness on his left side . When they were trying to get him from lying to sitting he wasn't putting his left hand above his head like he is supposed to. They were great with Thomas as well the new Woman that i will be having was playing with him and he loved it lol. I have another appointment with her in two weeks.
The Nicu appointment was good as well they have the same concerns that my other private pead has that he is slightly stiffer on the left side then the right but that my private pead is doing everything right. Oh and they said something about going off his elecare im not sure why he isnt eating much still. He lost another 200grams in a week so it will be interesting to see what he weighs tomorrow at his health nurse check.
On Thursday he had hiss eeg appointment. Well lets just say it didn't go very well. They couldn't get a trace because Bailey was not having a bar of having all these wires on his head and he screamed and hyperextended and they couldn't do it. So now he has to have it done again sometime this month under sedation!!! Now I'm totally freaked out I just don't know if they will montier him, How they will give it to him because he can't take anything orally and what will happen if something else happens lol. I know i might sound paranoid but oh well. I also am meant to be seeing my private pead this week to discuss his eeg and how much medication to give him for his seizures but how are we going to do that if there are no eeg results. I figure i should go anyway because there are questions i want to ask him about the sedation and seizures anyway.
Then on Friday we had Ryan's swimming carnival so off we went to that he did very well and came 2nd in one race. We also got his report card it had on it that he wrries if him makes a mistake i told his teacher that he is like this at home as well and i tell him if he tries his best that is all that matters.
I spent the weekend relaxing well as much as a mother of 3 can relax!!!
3/27/09
The Dummys guide to being a successful blogger!!!
To be perfectley honest with you iI would not have a clue lol. I am A complete newbie to blogging and i haven't even figured out how to follow other posts yet. I don't even know if anyone is reading this or if I'm just talking to myself!!!
Anyway I am absolutley worn out i have had 6 kids here today!!! Remember i only have 3 the other two were my 2 nieces and nephew. I can honestley say that if i wasn't sure about having any more children i definatley am now.
Bailey has been pretty miserable today so i don't know if he is getting teeth or sick or what. Problem is i never really do know. Every time he gets sick its so sudden we end up in hospital. I have noticed today that he is when I'm supporting him standing on his tipy-toes on his left side he hasn't been doing this before now so I don't know whats up with that. He has also been extra cuddley today which i love because he usually isnt like that.
Well we also had another day of bad eating he has eaten 438calories today with only tea and another bottle before bed so it will be interesting to see what they say next health check. Anyway better go crying baby wants my attention :)
Anyway I am absolutley worn out i have had 6 kids here today!!! Remember i only have 3 the other two were my 2 nieces and nephew. I can honestley say that if i wasn't sure about having any more children i definatley am now.
Bailey has been pretty miserable today so i don't know if he is getting teeth or sick or what. Problem is i never really do know. Every time he gets sick its so sudden we end up in hospital. I have noticed today that he is when I'm supporting him standing on his tipy-toes on his left side he hasn't been doing this before now so I don't know whats up with that. He has also been extra cuddley today which i love because he usually isnt like that.
Well we also had another day of bad eating he has eaten 438calories today with only tea and another bottle before bed so it will be interesting to see what they say next health check. Anyway better go crying baby wants my attention :)
3/26/09
Vomit, Vomint and you guessed it more vomit!!!
Well let just say I'm sick of seeing the stuff!!!!! Last night Thomas vomited all in his bed i had to get my hubby Sam to clean it up. Don't get me wrong i can handle baby spew and all types of diarrhea and things but i can't handle adult or older kids spew and lets just say i didn't want there to be more spew then what there was to begin with!!!
Anyway i decided to write down what Bailey eats in a day to give everyone who is watching this blog an idea of what he eats-By the way I'm not seeing the dietitian till the 11Th May!!!! Which i am quite concerned about how much weight he will lose up till then anyway.
7:00am 150ml bottle or 5oz
7:15am Little vomit
9:00am 4 teaspoons of banana, pear and mango
9:30am Little vomit
11:45am 6 teaspoons banana pear and mango
12:15pm 150ml bottle or 5oz
12;45pm BIG vomit
1:00pm little vomit
1:20pm little vomit
3:45pm 150ml bottle or 5oz
So far he has had 356 calories for the day now he is meant to be having for his weight 985 as you can see with only one more bottle tonight and tea he is not going to get that in and i have tried putting upping the calories in his bottle one extra scoop so he is getting more in-he just won't drink the whole bottle!!!
So anyway it's going to be interesting to see if he loses weight again or if he continues to lose weight till we go to the dietitian. Actually I'm quite worried about this i would value anyone Else's opinion on the matter!!! I just don't want him losing drastic amounts before he goes to the dietitian.
I also wrote out a list today to take with me to the specialist who diagnoses cerebral palsy so i don't forget it. I'm one of those people who forgets everything as soon as i walk in a Dr's office lol unless of course I'm totally comfortable with them.
Anyway i decided to write down what Bailey eats in a day to give everyone who is watching this blog an idea of what he eats-By the way I'm not seeing the dietitian till the 11Th May!!!! Which i am quite concerned about how much weight he will lose up till then anyway.
7:00am 150ml bottle or 5oz
7:15am Little vomit
9:00am 4 teaspoons of banana, pear and mango
9:30am Little vomit
11:45am 6 teaspoons banana pear and mango
12:15pm 150ml bottle or 5oz
12;45pm BIG vomit
1:00pm little vomit
1:20pm little vomit
3:45pm 150ml bottle or 5oz
So far he has had 356 calories for the day now he is meant to be having for his weight 985 as you can see with only one more bottle tonight and tea he is not going to get that in and i have tried putting upping the calories in his bottle one extra scoop so he is getting more in-he just won't drink the whole bottle!!!
So anyway it's going to be interesting to see if he loses weight again or if he continues to lose weight till we go to the dietitian. Actually I'm quite worried about this i would value anyone Else's opinion on the matter!!! I just don't want him losing drastic amounts before he goes to the dietitian.
I also wrote out a list today to take with me to the specialist who diagnoses cerebral palsy so i don't forget it. I'm one of those people who forgets everything as soon as i walk in a Dr's office lol unless of course I'm totally comfortable with them.
3/25/09
3/24/09
Weights!!!
Weights every week or fortnight, or however often you get your premature bay or any baby weighed you are constantly worried if they have gained enough or too much!!! With my firstborn Ryan he weighed in at 7 pounds 4 ounces he was fairly active fairly quickly, rolling at 3 months, crawling at 5months and walking at 9 he weighed about 25 pound 2 ounces at 18 months and currently weighs39 pounds at 5 years old, He is also about 112cm tall.
Thomas on the other hand was my little porker lol. He weighed 7 pound 5 ounces and was born at 37 weeks!!! Can you imagine the size he would have been if he was on time!!!!. He weighed 20 pound 9 ounces at 6 months of age, I know he was a little chubber lol. He now weighs about the same as Ryan only about 10cm shorter. His weight does not bother me he has got hugeeeee hands so the health nurse thinks he is going to be very tall when he is older.(watch out rugby league in 14 years lol)
Bailey as you well kn ow was my premmie born at 29 weeks he weighed a tinyyy 2 pounds 14 ounce(although this is nothing compared to some other preemies). He weighed 4 pound 4 ounces when he came home. He has never been a big drinker i breastfed him with a nipple sheild till he was 5 months old and i wouuld of done even longer only my milk dried up due to all the stress of trips to hospital aand back. He is now on a formula called elecared the milk protein is already digested so he doesn't have to do it. Apparently thats what he has trouble with. He currently weighs at 10 and a half months 18 pound 8 ounces.
As for me, well lets just say we won't go into that lol.
So where am i going with all this weel as i mentioned yesterday Bailey seen the Health nurse today for his fortnightly weigh and length. He had gained nothing in 2 weeks he even lost 10grams i know it doesn't seem much but its a lot to me. For the past week he has only been having 3 bottles and 2/3 of a jar of baby food if im lucky. The health nurse said he should be getting way more then that and i explained that i find it really hard to get him to eat solids at all and she said that i shouldnt be giving him more bottles ( he wouldn't drink them anyway) because he needs to learn to eat and want solids so anyway weights are going to become a problem.
My speech therapist rang up today and said she has been trying to ring the dietitian up herself to say his case was a priority but she couldn't get through but she will keep on trying!!!
Anothing thing to mention Bailey had a seizure yesterday it lasted 4 minutes it was a tonic clonic one i rang my pead dr to tell him and ask him if i should take him up to hospital he was meant to ring back. He didn't so i didn't take him he came to about 10 minutes after it happened and was his normal self so i figured they would only want to see him if he is still really lethargic for ages.
It is soooo cute to see Thomas and Bailey playing together Bailey was doing his version of a laugh to Thomas when he was doing something funny. He also thought it was funny to pull thomas' hair Thomas however did not!
Bailey having some Bumbo time!!!
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