Diagnosis and a whole heap of stuff!!!

On December the 6th we received Bailey's official diagnosis and while the damage wasn't in thearea of the brain we thought it was in it was still there that means that Bailey does indeed have mild cerebral palsy affecting his left side his balance his depth perception his behaviour and his high pain tolerence level( which is a whole other story).

Our Dr explained that Bailey has two catche's in his right leg and his reflexes were slower than they were last time. He explained that this couple with the fact that he falls alot coupled with the fact he has a high pain tolerence(more on that later) means he needs a hinged AFO on his right leg which we are going to get fitted for tommorrow if this does not work than we will be talking about botox when he goes back in February.

I was relieved that we finally got the diagnosis not that i want him to have cerebral palsy but just knowing that all this stuff he does is indeed a symptom of something and not nothing makes me feel like we are on the right track to get him sorted out.

Now Baileys troublesome high pain threshold. We have been having a bit of trouble with this lately he has jammed his fingers in the door twice and cried for 2 seconds. He has fallen off the top bunk that i did not know he could climb while i was in the toilet and didn't utter a whimper. On Christmas eve he was at my in-laws and he was trying to get down a step and held on to a slightly heavy aluminium table. Well the table came down on top of his finger he screamed which is unlike Bailey but about 30 minutes later didn't seem that upset. His finger was bruised and swollen but i thought that it wasn't broken because he wasn't crying. He was crying every now and then and in the night but he also has a flu at the moment so i was unsure as wether it was his finger or him feeling like crap either way i gave him Panadol to help.

Fast forward to 3 days later when he started getting high temps and breathing fast his asthma was playing up so they told me to take him to the hospital which i did. They wanted to do an x-ray on his finger but they didnt think it was broken because he wasn't crying about it much and he also had an upper repritory infection. Well guess what turns out his finger is broken and it's across a growth plate so we have to see the plastics people tommorrow.

Fast forward to yesterday he falls over on the cement and grazes his head then last night he hit his head on the corner of hubbys bedside cabinet blood everywhere then today he bumps his head on the corner of the door this high pain tolerence level thing is really getting to me i never quite know when he is really hurt!

So i'm quite stressed as you can see i don't know what i can do for him. We have 3 appointments all in a row tommorrow and Ryan is on school holidays so all kids are home hubby home to. Isn't it funny when u wish they were home but when they are you get sick of them lol!

MRI date!!

OOPS forgot to add we have an MRI date 3rd of November which is soon then we catch up with the developmental specialist on the 2nd of december to discuss results!

Obstructed bowels!

Well it happened 3 days ago Bailey did two realy hard stools then the next day he started having diahorrea then the next day after that the diahorrea continued and he started burping a lot and it smelt like faeces! It was disgusting but i thought he might of just had a gastro so let it go. During the night he vomited everywhere in the bed and it smelt really really bad. His diahorrea was really bad as well. I waited to morning and took him up to the hospital. Their diagnosis Bailey had an obstructed bowel and was very dehydrated not dehydrated enough to stay in hospital though. He actually picked up a bit while we were there. So we were sent home on strict orders to get his fluids up. About 2 hours after we got home Bailey did his "normal" bowel action. We have to see our peadiatritian about his bowels though because he has really had trouble with them since he was born.

Developmental Pead review and ...... Thomas's Birthday!!!

Hi everyone, well Bailey had his developmental pead review last Wednesday and my head is still reeling from it. He said that he is highly suspicious that he does have cerebral palsy but he won't say definate until he has an MRI scan!!! I'm so scared about this MRI Bailey has never been under a general anesthtic before and with all his problems in the past it's just putting me on edge. We are waititing for a date on the MRI so I'll tell you when we have one. Bailey has an ataxic gait he is very unsteady and he actually didn't know why he fell over more then what he does. His left wrist is tighter then his right but he could see no tightness or "catche" in his left foot on that day! He also doesn't want me to get his vision checked because him not looking and stuff may be associated with all this.

Happy Birthday My little man Tommy you turned a big 4 today-4 going on 8 :) I hope you had a great day. Well he was stoked with what we got him and was playing with puzzles all day. He got some money for his birthday so he wants to get some more puzzles with it. He had a Mickey Mouse Clubhouse cake which took me 3 hours to do but i was pretty happy with the results.

A Busy Couple of weeks!

Hey everyone!!! Bailey has been ok we have been battling with bronchilitis (AGAIN) the last couple of days but i think we have passed the most dangerous days of it he was breathing pretty fast with it but me being the old pro I am could tell if he was getting into any major distress the dr told me to take him up to the hospital if he started breathing really really fast.

We had an OT appointment the other week and this time it was play gym. He did not like many of the things that she had there. He is now on whats called a sensory diet (No it's not a food diet like my husband thought:) It is when Bailey gets into that stage where he has absolutley no control over his emotions and not able to bring himself back down that i am to do these activities with him (did i mention he didn't like many of the things!!) These activities include pillow sandwhiches, Bouncing on a fit ball or trampoline, swinging in a hammock and singing and stuff. Bailey only liked one thing there and that was a saucer thing she had which he actually didn't like at first but when she put balls in it ( His new favourite toy) he was right.

It is hard to do these things with him because i am meant to do it before he has a meltdown because when he has one he is going to be harder to deal with then what he would be before but the thing is with Bailey there is not warnings before he has one its just instant so I'm trying my best but he is not liking the activities. He has also got his reflux back quite badly too and i wonder what this is from. His exzma ia absolutly horrendous and i can't get it under control i'm already using a steroid cream twice a day and a really intense moisterizer twice a day too but to no avail. It must really itch him especially on his back because when he has just a nappy on and you just rub his back he closes his eyes and nearly falls asleep even when he isnt tired. Poor little thing!

Thomas will be going to kindergarten next year and he will soon be having his pre-kinder sessions. They have changed how many days he will be going now and now he will be going 3 days a week instead of 2 (WOOHOO) Not that I will not miss him but it will be good to be able to focus all my attention on Bailey on those days and i will also be able to book appointments for then as well.

Ryan has been going ok speech therapy is working along nicely for him. He is still having trouble with some words and he doesn't sometimes get that s and h together are sh he just sounds them out as s he. He got into trouble the other day of my hubby for putting blu-tack in his hair ( I couldn't help but laugh a little bit lol)

Well I should go Bailey having a meltdown time for a sandwhich a pillow sandwhich that is !!!!

Fun Friday!!!

I have been a tad busy, which is why i have not posted recently. With all thoughts of not having a hospital stay this year Master Bailey decided that would not be the case. Last Friday he started to get sick really clingy ( more than usual anyway) and he was having temps in the 39.4 degrees celcius. I managed to get his temp down to 39 with panadol 38.6 by stripping him off and i was running out of ideas! So I got our local GP up and he couldn't find anything wrong with him but said to keep an eye on him. Saturday My poor baby was gasping for air when he was sleeping he actually woke himself up by being so loud. When he woke i noticed he was feeling a little bit hot so i took his temp which was 37.6 i thought oh thats not too bad but also thought that i probably should give him some panadol now cause he was due for it and i didnt want his temp sky rocketing again. After I gave him the panadol I was walking back into the lounge room when he had a febrile convulsion He went stiff started shaking and holding his neck in a weird position and just screaming and a look of absolute terror in his face! So I rang the after hours Drs and they said go straight to hospital. He had another seizure before we left and his temp was 38.7 he had 3 more seizures at the hospital.

When we got up to the hospital his temp was still 38.7 and although the Dr up there could not find anything wrong with him because of Baileys history and the fact that his temp was not going down that we should do a set of bloods on him. This is how zoned out Bailey was he cried for the first prick ( they had to do it 4 times cause they couldn't find a good vein) and fell asleep during the other 3 he didnt even make a sound. They wanted to keep him in overnight because of his temps and the fact he wasn't drinking much. So poor Sam woke up on fathers day with only half his family there! When we got up to the ward his temp was 39.6. I got very little sleep because you have to sleep in these recliner chairs and Bailey would not let me go! By the morning he had picked up a bit and was running around the ward saying ta ta to everyone. When the pedis came to check him over before going home they told me that his lymph glands were very enlarged and if they went red over them then he had to go back. They could see no reason for his temps and letharginess his CRP level came back a little higher then normal but nothing really bad so off home we went.

All day Sunday Baileys temp was in the 39.7 degrees. I just kept the fluids up to him and tried my best to comfort him. On Tuesday I noticed a strange rash near his nappy I asked my Health nurse who was doing Baileys weight ( a 200gram loss by the way) and she said it looked like staph infection. So got the Dr up and lo and behold it was. So he is on some antibiodics for that and some cortizone cream for his exzcma because thats where staph get in apparently. So the hydro pool was out for us today!

Last night was Thomas turn he was crying most of the night with an earache and i think (No I'm near betting on it) that he has an ear infection because he has had grommets in his ears if he gets a ear infection it should ooze out the fluid (gross i know) which it is doing so I have the Dr coming up today to check him out. Honestly i think the guy must make a fortune out of us.

Sm has been home all week he took the week off work and we took the boys to the movies to see UP it was great and they were cracking up laughing the whole movie. On the way home we somehow got onto the topics of future occupations and Ryan wants to be a tattoo artist I told him he can be whatever he wants to be (well as long as its not a drug dealer rapist,or criminal) as long as he is happy! Thomas wants to be a Chef BIG SURPRISE THERE ha ha he loves his food !

Update!!!!

Hey everyone sorry it's been awhile I've been super busy last week there wasn't a day without something on it so. Monday was Ryan's Birthday so i was busy cooking two cakes for him-one to take to school the other for home. Tuesday we had the health nurse up to see Bailey for his weights and growth. Wednesday we had a 12 month corrected followup at the hospital NICU. Thursday we had Early Learning down then Friday we had Physio and Hydro-therapy.

Bailey is doing ok. On Tuesday he was weighed and measured and he put on 500grams in 3 weeks so i was very happy with that as he hasnt been putting on much if any lately so he is now 10 kilos and 79.5cm tall and head circumference is 47.5cm.

Wednesday we went to the hospital and they had a few concerns there. He scored 0 in his fine motor skills like picking up string with a pincer grip he can't do that yet or throwing a ball(it takes all his balance just to stand up!). The Physio there said he had a very very low attention span as he wasnt interested in what she was doing or wanted him to do. Also said his legs and ankles were floppy which could be whats causing him to fall and the catch he has in his left foot could also be contributing to it (Baileys regular Physio found this catch last time we seen her about 1 and a half weeks ago). We then went into the Pedis office and had a chat to him he is thinking that we should see the developmental specialist sooner rather then later because it could be something nueroloigical or it could be just something orthapedic so we need to get it cleared up. He did however say that if Bailey has one of many things he could have that it would only be mild (i started to worry when he said that) So we are seeing the developmental specilist in october.

Thursday was with early learning we did some sensory things like with san and finger paint. Bailey absolutly hated the sand he would only touch it with the spoon after awhile he did put his hand in but pulled it out again nearly straight away. He wasn't too sure about the fingerpaint too.

On Friday we had Hydrop therapy and Bailey is still absolutley loving it. The OT said he is either going to be a diver or a swimmer as he has no fear whatsoever and goes under multiple times. I raised the concerns with her about his score of 0 in his fine motor test at the hospital and his low attention span. She said she doesn't know how he could have scored 0 because he can pick stuff up and other things so we will see about that. Also she said he does have a low attention span but when he is focused on something he will concentrate. Also the hospital said yesterday that he know now when something is too hard for him and he is just not doing it.

His speech is really good at the moment he can sign finished and we are working on more he can say heaps of words mum,da,nan,bub,pop,nishnish (for finished while his signing it :P),ta, ta ta,this .His tantrums or meltdowns are good on some days and worse on others. He freaked out at Ryan's cake we had family up and he just lost it with all the noise and clung to me and cried.

Thomas is doing well he is getting better at nice play and I'm trying my best to spend some quality time with him. He has been complaining about a sore leg the past couple of days so i will keep an eye on that anyway best be off as Bailey is crying mumumumum!!!!

Maniac Monday!!!

Well after i type this post out i will be a maniac trying to cook enough cupcakes for the rspca cupcake day. The day is actually meant to be today but we are having it tomorrow because Ryan has an exchursion today. It was all ryans idea actually the money goes to feeding all the hurt injured and waiting for adoption dogs cats bunnys horses and want not. Ryan seen the ad on TV and asked if he could do it ( I know I know his a real sweetheart) so who was I to deny him we have organised it with his school to sell the cupcakes at their recess and the prep class will be doing it all.

Speaking of Ryan we have had a trip to our emergency department. On Saturday he was complaining about a sore hip he couldn't walk on it and was huddled over in pain. I rang the after hours dr and a nurse answered the phone first and i told her that this had happened a couple of times in the last year but it usually went away with panadol. I thought it was just growing pains! Now this nurse made me feel like a really bad mum with what she said to me she told me that it was stupid that i hadnt got it checked out and that it could be numerous things and that it was NOT growing pains and she was going to call the dr. So got off the phone and nearly burst into tears. Then dr rang and told me to go up to the hospital because it needed to be investigated so off we went they gave him some stronger panadol and soon he was walking on it again. It took them 6 hours to see him because he was a catergory 5 which is the lowest priority and when i finally seen the dr he said that it could be juvonille arthiritis so he is to have an xray this week and then we will see our local gp to discuss results and he will give us a referral to see the orthapedic people. Grrr if its not one thing its another.

Bailey is still loving his hydro-pool lessons he just wants to constantly be moving and he is now putting his head under (not face) which is a major improvement. We had early learning down and Kathy said to me that Baileys hamstrings were tight and he wasn't aware of his surroundings when he was walking he will just go straight over the top of something so i should speak to his PT and see her well i have an appointment this week before his hydro pool appointment.

Thomas is doing OK i've been a bit worried about him lately i feel like his always left out and doesnt get enough attention so ive been trying to give him a bit more. He loves reading books and doing jigsaws and when Kathy came down she brought him a jigsaw to play with he had them done in about 10 minutes hehehe !!!

Life and Death!

Sorry i haven't blogged for awhile on sunday night at 10:20pm My Uncle passed away. He had extensive brain damage and wasn't breathing by himself so his wife decided to take him off the ventilator it must of been a hard decision and my thoughts and love are with her and my cousin.

Bailey loved his lesson in the hydro pool I mean loved it the OT said he was actually less sensitive in the water then what he was out of it so that was great he was trying to swim all the time and proceeded to swallow large amounts of water as a result :P. He wasn't too keen when they put the bubbles in though he didnt want a bar of them and he didnt want his head to go into the water either but i knew he would do that its a matter of easing him into it. He has began not to sleep again he is awake most of the night and i dont know why! But I've got him here and thats all that matters my uncles death has shown just how much you should cherish each and every moment with the people that you love because you never know when that last moment will be. I have written a poem for him to read oput at his funeral (or try anyway).

5 minutes

You were such a happy man,

who did all the right things in life,

i know that you will always be watching,

over your beautiful daughter and wife.

Sometimes life just isn't fair,

Just how much no one can ever guess,

But to everyone you were great,

God only takes the best.

If only i had 5 minutes,

The night you passed away,

I'd give you one last kiss,

and tell you it will be ok.

But you were gone so quickly,

one last breath you'd take,

before you even knew it,

you were standing at heavens gate.

Now God has called upon you,

it's time to get your wings,

to leave this life behind you,

and enjoy all heavens beautiful things.

Everyone who has read it has cried so sorry if i made a tear well up in your eyes. I will leave with a comment made by Ryan that may make you laugh instead. this morning he was watching discovery home and health and there was a programme on it about parenting for dummies that was on and it said about comforting your child when they cry or something like that. Ryan pipes up and says but mummy you are always cuddleing Bailey and he never stops crying :P Out of the mouths of babes :)

Yet another weight loss!!!

The above picture was taken this morning i ask any of you out there who have seen sitting of this sort what it is wether it is associated with low tone or what??? Bailey had an appointment with the health nurse today he weighed 9.52kg a 20 gram loss in 3 weeks!!1 He grew 2cm at long last so he is now 79cm and his head circumference is 47.5cm ( a lot smaller then my other two boys who were around 50cm at about 6 months of age :P) I don't know why he hasn't put on any weight he eats sooooo much it isnt funny!! he has however cut out to two bottles a day on an odd occassion he will have 3 but its genrally 2 and those are only 180ml bottles!!!! He won't drink anything else and he cant suck out of a sippy cup! Any ideas ANYOne i would appreciate them. We have Early learning coming on Thursday as well as having AUSTAR installed YAY. It's my birthday tomorrow but i'm not really in the mood to enjoy it my uncle is in hospital at the moment in an induced coma and on a ventilator. He is a mechanic and he was servicing a cherry picker when he knocked his head and accidently knocked the buttons on the cherry picker which crushed his head. He has no brain swelling at the moment but these things can show up hours later. Please pray for him!!! Hydro therapy also starts on Friday and Hubby is coming to watch so that should be fun!!!

Bailey-update!!!

Hey everyone well i Know Amie reads my blog so hello Amie xxx :) Bailey is doing heaps better although had the dr up yesterday cause he wanted to check him our again and he said he could now hear a few souns on his right lung so I have to keep an eye on that!!! I am now sick bur i can deal with it lol Ryan is the only one who managed to steer clear of this illness lucky thing. Thomas is being so naughty lately i don't know what to do with him I have given him timeouts in his room taken toys off him nothing phases him. Bailey is having more and more of these "tantrums" which he can not control himself in and its really stressing me out i can't wait till he finds new ways of dealing with it. The other day was a particulary day when i felt like i was about to meltdown it took Bailey after one of his meltdowns 3 hours to get back to himself!!! It wasn't nice especially since that was the same day Thomas had been really naughty as well. I will leave you here with a few pics of Bailey on the day he was his worst and on the next 2 days after

Can you guess which is which????

Sorry about the short post yesterday!!!

Well I'm absolutly exhausted i havent had any sleep for the last 3 nights and Bailey has me all day which might sound like it's a good thing resting the why does it take so much out of you anyway if anyone out there was praying for him yours and my prayers were answered today Baileys pnemonia is nearly completley gone =) He is on tami-flu and antibiodics the Dr said we have just caught it before the going to hospital stage so we are very lucky!!! Now Thomas has a chest infection!!!! I swear its never ending maybe i should go to uni and become a dr lol at least i would be able to treat my kids myself lol. When Bailey was first born and when he came home and was in and out of hospital(actually the whole of my pregnancy with Bailey) Sam( Hubby) used to joke we need to hire out a room up there. Speaking of sam he is a glazier 9fixes windows and doors and stuff) and today the poor thing is out in the pouring rain fixing a broken window next thing i know HE will have pnemonia!!!!!

A long hard day or week!!!!

Well i dont have much time to write this Bailey has pnemonia and possibly swine flu he is one sick little boy please pray he gets better ;(

The Good News and The Bad!!!!

I'm just going to say the bad news first so i can get it over with! Bailey had an appointment with Occupational Therapy today and he received a diagnosis of sorts he has sensory proccessing disorder which means he is overly sensitive to touch and has trouble regulating his emotions and can't bring himself back to that normal level which any other person child or infant can! The good news is that we can try and find ways in to help him deal with them better. We are starting with the hydro therapy pool every week for 6 weeks then depending on wether he tolerates it or not moving onto the Gym for another 6 weeks so i am going to be one busy mummy for awhile with all the lessons and early learning and Baileys checkups with peads and so forth i just feel like I'm neglecting the other kids a bit all this stuff with Bailey makes it hard to spend any time with Ryan for his speech therapy and just plain time for thomas to just read to him or cook. This has turned into a bit of a rant hasn't it I'm sorry just feeling a tad down! I went and brought Bailey some bathers because he doesnt have any being winter here and everything got some for myself as well and Ryan needed new shoes and both of the older boys needed slippers. I finally found some shoes for Bailey that had all of the requirements that the physio wanted they are called i-walk and they are great worth the $65 for sure!

PHOTOS

I thought this photo was just too cute
Tommy asleep on the couch i dont know if ive put this up so excuse if i have lol

Asthma, Speech therapy and Physio!!!

Ok ok the titile of this post the first two parts are to do with Ryan last one Bailey. Ryan was not very well this week on Tuesday he came home from school and he looked terrible! Then his temp started going up at one point it was 39.8 degrees! So i rang my GP who told me he would be up later that afternoon ( The guy does home visits gotta love him :)) After the phone call Ryan started having an asthma attack he started coughing to the point where he couldn't get a breath in then started vomiting! A 2.5mg nebule seemed to do a lot He was still coughing but nowhere near as much and he wasn't vomiting. GP came up and as soon as he seen him he said It looks like he has pnemonia I said oh crap! But when he checked his lungs they were clear andeverything else was fine he said he wanted to see him tomorrow because he looked so unwell and he was he was all floppy and hot and terrible. GP was hoping it was a virus. Well turns out my GP was right next day apart from coughing Ryan was nearly back to his normal self when the GP came in he said it was like looking at a different child and apparently the 3 kids over the road from us have the same thing today!

On to Ryan's speechtherapy he makes me sooo sad sometimes with the problems he has. He is learning ch and j words and he was doing ok i was trying to get him to say the words really pronouncing the ch and he came to stretching and he couldn't say it i felt sooo upset and then he started crying and said mummy i can't say it :( then i nearly cried what he muct go through at school because he can;'t be understood it near breaks my heart. Today he gets his school report so we will see how he is going!

Bailey's Physio appointment went alright BAILEY IS WALKING well his walking 5 steps at a time before falling over. She did have some concerns with his feet though he is scrunching his toes in and standing on tipytoes still and when she checked his feet she said he had low tone in his ankles and you know how ive been saying about his sitting low trunk tone so solution heaps of practising squatting because he just sits down to get something if he is standing. And hard soled shoes they have to be straight at the sole have good ankle support and no arch and they have to be in his tiny foot size 3 lol I tried several stores and couldnt find any all shoes that little are soft soled so having some trouble any suggestions would be great.

Thomas is being his normal boistourous self and he wants a cupcake maker for his birthday apparently. This cupcake maker is a girl gourmet thing so its generally for girls but what can i say the little guy loves to cook i swear he is going to be a chef when he is older!

To Hospital and Back!!!

Hi all sorry about the lack of blogging Bailey decided that he would like to have a little visit to the hospital. Wednesday he started coughing and i thought OH NO BRONCHILITIS but i also thought well his a big boy now so he should be able to handle it I was wrong!!! Thursday he started having a lil trouble breathing then i went to my other son Ryan's assembley and after that he was bad you could see a trichial tug and some good recession( arn't i an expert at all these names!!!) :P so I called an ambulance and they came and got him his sats where at 94 and his heart rate was 154!!! so they whipped some oxygen on him and he was a bit better and the whole way up he slept Bailey is a sticky-beak so this was really unusual! Got up to Hospital they said that he does have bronchilitis although his breathing had settled down and as long as he was getting 500ml of milk in he would be ok they also said that he is not to get the gastrp that is going around as he would probably end up in hospital because he is already not drinking much> Now lets pray he doesnt my dad has had it and so have two of my sisters :(

Look At me!!!

Mr clever Pants standing all by himself mind you i only just caught this photo before he fell :)

It is soooo cold in tassie. Brrrrr so cold in fact we are going through about $8 worth of power a day!!!!! We have all the heaters turned on im seriously thinking we should get some batts. Well we had another trip up to the hospital last night not for Baile this time but for none other then myself i felt really really sick yesterday had temps of 38.9 degrees and felt like i was going to vomit had a huge headache and was aching in my pelvis by the time hubby got home i couldnt get into the drs. In fact i could hardley get out of bed. So we went up and the said I have influenza and gave me a bag of fluids to rehydrate me because i was dehydrated. Now I just hope my other men don't get it. Feel a bit better today though.

Bailey took 6 steps tonight 6 very hard steps he was wobbling all over the place but he did it. I'm actually having real trouble with him eating non-food items like wood that he gets from goodness knows where!!! and bits of plastic I swear my house is clean!!!! But this kid can find anything and you know when his got something in his mouth because he won't open it. I'm just a bit afraid of him continuing to do this and eating something that will hurt him.

On a sadder note Ryan came home today and said that two of his classmates had been laughing at him because he couldn't speak properly :( it broke my heart the boy lil guy. I told him to tell the teacher if the do it again and that he shouldn't worry about what they say because he can speak fine he just needs a little bit of help which he is starting soon.But Honestley who could tease a face like this!!!

You may ask why i haven't got any photo's of Thomas well all the photos of him he is always naked or half nake :) and i don't think he will thank me if I have photos on the internet of him showing his parts when he is a teenager hehehe!

Sleeping like a baby (or not)!

Bailey who has been put in his toybox by his brother!!!
Smile!!!

This is how i found him one day when i had been blogging i came out to find him like this!

Well sorry for not blogging lately I just havent had the time. Bailey is getting such a handful what with that and Ryan going to schooleveryday and Thomas needing my full attention when Ryan is at school because his bored well you get the drift.

Bailey is doing pretty good! He has moved on to nuttelex, chicken, lamb and we have to start swede today! He also gained 130 grams in a fortnight thank god i was really worried about his weight gain! We have also started giving him his losec again apparently his throat is red raw and he doesnt have tonsilitis so the Dr can only assume it's from his reflux so bring on the 10mg losec. He has been putting his fingers down his throat when he is eating so i'm not quite sure if thats to do with his reflux i'm 90% sure actually.

Bailey development stands at this he has finally learnt how to clap hands but only when prompted (I have to hold his arms) He is still not waving goodbye. The hand tremors are back only when he is trying to feed himself and he drops his food a lot. He is crawling like a greyhound seriously I haven't seen a baby crawl as fast as he does but on the other hand he has started to drag the left leg a lot. He has also began sitting on his tailbone I'm not sure what that means. He can stand by himself(that's right folks) for 5 secs with a big goofy grin on his face and to my complete and utter surprise took 3 steps last night to his daddy!!! He has major problems with balance but his getting there and his trying which is what counts!

Sleeping is another issue. He is just not that into sleeping he has 1 day sleep lasting from anywhere between 1 hour and 2 hours and goes to bed at 8:30pmand wakes at anywhere between 4:00am and 5:00am. Lucky for me I have a great husband who every second day gets out with him so i can have a little bit of a sleep in. I will leave you with some recent pics of my baby boy!!!

A weight loss!!!

I was hoping that i wouldn't have to put up anything about a weight loss today in fact i actually thought Bailey had put weight on i was sure he would be 9.5 kilos at least! I was very very wrong. In the last fortnight Bailey has lost 100 grams so he now weighs 9.06 kilos and is 77.5cm tall i was devestated I have been working my heart out to get him to eat this last week and i thought he was doing great he was certainly eating a lot! Apparently not enough so i am waiting on a phone call from his dietitian to see what to do. I don't know what she will do because if i add extra calories to his bottle he just doesn't drink as much!!

Ryan went back to school today after having 3 weeks off! Talk about tiring all the older boys did all the holidays was fight so today is actually very quiet i miss him lol. He didn't look very happy at going back either and told me he had a headache. I didn't know if he was telling the truth or lying so i told him if it got worse id come and get him from school. He does have headaches Ryan and he near vomits with them and has to be in a dark room so i hope he is not getting one of those!